Shame, Shame: How Even ‘Modern’ Countries Ignore Human Rights in TB Treatment

In response to the arti­cle titled, “Man­i­toba woman jailed after stop­ping tuber­cu­lo­sis treat­ment.’ Click here for arti­cle.
By Jonathan Smith

The ques­tion of forced quar­an­tine in the con­text of tuber­cu­lo­sis makes for a lively dis­cus­sion amongst us in the human rights arena.  Iso­la­tion cre­ates the oppor­tu­nity to ensure accu­rate and appro­pri­ate treat­ment, as well as mon­i­tor our patients’ safety, recov­ery, and gen­eral well being.  There is, how­ever, an abdi­ca­tion of one’s per­sonal rights in doing so: they give up their per­sonal rights for the greater good of the pop­u­la­tion.  In most con­texts, peo­ple will acknowl­edge their need for quar­an­tine and do so will­ingly.  But it gets a lit­tle hairier when peo­ple refuse to give up their rights — when the ques­tion of forced quar­an­tine comes in. Canada has recently shown us an exquis­ite exam­ple of how to com­pletely screw this up.

But the arti­cle vil­i­fies her — such as need­lessly point­ing out that she is a sex worker — which allows the pub­lic to become more tol­er­ant of this non­sen­si­cal depri­va­tion of human rights. It also makes TB a ‘shady’ or ‘dirty’ disease.”

First off, the arti­cle is about a woman who refused her TB treat­ment in Canada.  This is a con­text where iso­la­tion, even forced iso­la­tion, makes per­fect sense. It is an iso­lated case in an oth­er­wise ‘unex­posed’ pop­u­la­tion, and with a woman who is refus­ing treat­ment.  Most nor­mal human beings will agree that this woman poses a threat to pub­lic health, and is a clas­sic exam­ple of ‘pub­lic health over human rights.’ (that age-old debate). How­ever, Canada’s province of Man­i­toba has a health act that allows the health offi­cials to obtain a court order that places indi­vid­u­als such as this woman in jail.  When did jail come into the pic­ture? What crim­i­nal act has she done? There is a vast dif­fer­ence between jail and forced quarantine.

Jail­ing unnec­es­sar­ily deprives her of other basic human rights, such as watch­ing TV or eat­ing what she wants, and makes lit­tle or no sense as a pub­lic health mea­sure.  But the arti­cle vil­i­fies her — such as need­lessly point­ing out that she is a sex worker — which allows the pub­lic to become more tol­er­ant of this non­sen­si­cal depri­va­tion of human rights. It also makes TB a ‘shady’ or ‘dirty’ dis­ease. Some­one with TB that works in an office may pose the same risk to his or her col­leagues; TB is in no way a sex­u­ally trans­mit­ted dis­ease.  But she is instantly per­ceived as a social deviant and that allows many of us to assume it is ‘ok’ that she is jailed.  This is an incor­rect thought process.

Why not forcibly quar­an­tine her in a med­ical facil­ity, where the vast major­ity of her rights will still be respected? She could even leave the facil­ity under super­vi­sion (the risk of trans­mit­ting TB severely decreases after a few weeks of treat­ment).  Why not accom­mo­date her needs and rights? Why not take a patient cen­tered approach to her treat­ment, even if forcibly quar­an­tined, instead of jail­ing her? Jail­ing will only push her away, enrage her, and gal­va­nize her resolve not to fin­ish treat­ment.  At least, thats what it would do to me.

A patient cen­tered approach and forced quar­an­tine are not mutu­ally exclu­sive. Once we start asso­ci­at­ing crim­i­nal­iza­tion with naturally-acquired dis­ease, we are on the wrong path.  She is a patient, not a crim­i­nal. And a patient-centered approach is what we need in this case.

The odd para­dox here is that this IS an iso­lated case, so we have more than enough means to tailer the treat­ment around her needs.  Even the most bel­liger­ent, hard headed per­son (which other accounts described her as) deserves to have her rights respected.

Canada has now set a prece­dent for other coun­tries to do the same — other coun­tries where forced quar­an­tine may not make the most sense (i.e. South Africa, where TB runs ram­pant and there are no resources to quar­an­tine every­one).  Again, this is a per­fect exam­ple of pub­lic over human rights, and a per­fect exam­ple of how to screw it up.

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